Tuesday, September 23, 2008

Happy 2 week Birthday, Cricket

Ava is two (weeks) today! This is a nice milestone for her and she should be through the most critical part now. She is doing better the past few days with her breathing but remains on "4" for the airflow on her nasal cannula. She sometimes gets down to "room air" but most times needs some additional oxygen. Ava has impressed the nurses with her gymnastics and ability to turn her head and kick and wiggle around. I think she is strength conditioning to try to make an escape one of these nights. Mom and Dad both held her today and yesterday, which she seems to like. Ava has been getting some Vitamin A injections and some additional caffeine (preemies often get caffeine to stimulate their breathing and it helps other things too).

Ava's weight has been up and down. She is just several grams higher than her birth weight (~28 grams in an ounce, if I remember correctly). This is common in very early preemies (to maintain weight for the first 2-3 weeks) so the doctors are not overly concerned at this point. She is getting some enhanced breast milk (added calories). For her, just a few added calories per feeding can make a difference. She is tolerating her feedings well (now up to 21 cc per 3 hour period).

Overall, she is doing well. We probably have 2+ months in the NICU and have been staying in Eugene at the Hospital Guest House (thanks again Children's Miracle Network) while we're here which is nice. Although, we have some good stories from the "Beta House" (fraternity) across from us. They have been keeping us entertained at night.
Here is a picture of Ava with her Cricket stuffed animal hovering overhead. She turned her head into her pillow and put her arms up. She was getting good oxygen saturation with this so they just let her be but I thought it was a cute pose and worthy of a picture!




Linda has been having her toughest Chemo yet but is doing better today after a rough first few days. She had some nausea this round (but luckily for her c-section stitches, kept it together). She really didn't have any nausea with Cricket inside her! I've been told that pregnant women have less nausea than those not pregnant.... Her anemia has made her much more tired this time so she has been napping on the couch in Cricket's room as needed. She isn't used to needing to nap so it is tough for her. There are 5 breast cancer survivors that are nurses in the NICU (two are Cricket's primaries) and they have been very nice to us. One of the nurses advocated to put Cricket in a corner room (at least for now) with more room, a couch that Linda can nap on, and a private bathroom so Linda doesn't have to worry about the public restrooms. It is wonderful they are taking care of us and Cricket so well. Here is Linda during Kangaroo time:



Linda is halfway through her chemo now!!! She is done with the AC and starts Taxol in 1.5 weeks. For that, they will have us in the hospital since there are rare cases of allergic reactions to the vehicle in which the Taxol is delivered (I guess there is stuff that you can get that is absorbed better, but I think it costs too much for them to offer it as 1st line chemo - bummer!). She will have 4 rounds of Taxol then have her breast surgery.

It can take about 1 month for the anemia to get better so she may be more fatigued until she recovers from that. However, each day she feels a bit better and a bit stronger.


Rob.

7 comments:

Unknown said...

Happy 2 week birthday, Cricket! We knew you would thrive and show us all your beauty and strength. Keep up the great progress.

Rob and Linda, hang in there and get plenty of rest. I did the Race for a Cure this weekend in your honor, Linda. You're so special to me and I pray for your health and complete healing always. (There are many who continue to tell me that they have included you in other praying circles) There's power in numbers!!
Love to all the Blair-Maloney household.

Unknown said...

Rob and Linda and Ava, What a beautiful picture of your little angel. I am in awe of both of you! Always have been, but if possible even more so. Linda, such a gentle and beautiful mother. Please know how much we love and admire you. Rob, such a rock for the people you love. Please know our prayers and thoughts are with all of you (Austin and Brian too!) with love and hope, sherry and rick xxoox

Audrey said...

Linda, darling, nap away! As I often had to remind my friend who battled (and beat!) leukemia last year, it is your JOB to take care of yourself right now. That means rest, hydration, and good eats. And in your case the added bonus of lots and lots of Cricket love! I'm glad to hear the nurses down there are taking good care of you, too. And Rob: you nap too! Think of the days when all three of you can be home and healthy and in your bed, all curled up together. Keep that vision in mind, okay?
Audrey

The Gale Family said...

happy 2-wk birthday to you!
happy 2-wk birthday to you!
happy 2-wk birthday deeear Avaaaaaa!
happy 2-wk birthday to you!

Great big warm loving snuggly gentle yummy hugs to all y'all !

I'm sending the essence of chamomile in this note (riiiight.......NOW!) & it's gonna help you get in the mood for a nap.

To sum up -- Happy birthday! Yummy Hugs! Nap! Love You!

Daisy Clifton said...

Happy Happy 2 wk birthday Cricket. Way to go! Positive vibes always coming your way.

Linda dahling, you look fabulous! Take care of yourself and you too Rob.

Much love always,
Daisy

Unknown said...

Hey Guys!!! Hang in there Y'all. Cricket has gotten her strong will from both of you!!!Many hugs and kisses for the Blair family from the Endersby's.

Love,
C

Anonymous said...

Ava is beautiful! And Linda looks beautiful too. Hang in there, all of you; you are all so strong (like mother like daughter!).